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The First Year: Celiac Disease and Living Gluten-Free: An Essential Guide for the Newly Diagnosed, by Jules E. Dowler Shepard
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Review
Living Without, April/May 2009 “This easy read is an inspiration not just for celiacs but for anyone with food sensitivity.”Gluten Intolerance Quarterly, Spring 2009 “‘The First Year’ is such a practical, well-written guide to the disease and the gluten-free lifestyle that it should be a part of a starter kit that doctors give newly diagnosed patients.”About.com, 7/15/09“A glossary, FAQ, gluten-free baking Q and A and an extensive list of Celiac support groups in the U.S. give readers the tools they need adapt to life without gluten. I highly recommend this book, not only for those newly diagnosed with Celiac disease but for anyone curious about this not so rare autoimmune, genetic disease.”
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About the Author
Jules E. D. Shepard is the author of a cookbook and a spokesperson for the University of Maryland's Center for Celiac Research. She lives in Catonsville, Maryland.
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Product details
Series: The First Year
Paperback: 282 pages
Publisher: Da Capo Lifelong Books; 1 edition (December 2, 2008)
Language: English
ISBN-10: 9780738212272
ISBN-13: 978-0738212272
ASIN: 073821227X
Product Dimensions:
6 x 0.9 x 9 inches
Shipping Weight: 12.8 ounces (View shipping rates and policies)
Average Customer Review:
4.5 out of 5 stars
102 customer reviews
Amazon Best Sellers Rank:
#221,445 in Books (See Top 100 in Books)
Actually I bought the book for there to search after more knowledge concerning celiac and gluten. This because both I and my wife often are having stomach problem, besides for my wife, often getting headache, and for me it started in getting seizures.I now live in Thailand, but I was born in Denmark, and there I was eating bread, but as the result of the mentioned problems, and after much reading in many books, now a week ago we stopped eating bread, to see if this will help. It is hard to get help, knowledge, from the doctors, out here.It is very interesting in the book among other to reading the many personal cases, which we there are getting. Of cause, I would have liked getting cases with seizures; I now own 20 books about epilepsy.Concerning the historical “discovering†about celiac, we in the chapter DAY 5, see that in 1924, bananas was found to work, being helpful in eating, by persons who had celiac problem. In addition, on one of the following sides, we read the story from a woman who was born in 1936, and ran into diseases, and two years later, in a hospital there being put on “Banana Dietâ€. Then in 1938, together with another girl, in the same hospital, then in a university medical journal documented as being the first child survivors from the celiac disease.Then in 1950 the connection between celiac and wheat was finally stated, after during the World War II, the wheat connection first discovered. And in 2003 then published the studies with 30,000 persons, and this telling us that the celiac disease was bot as seldom as 1:10,000, but instead 1:133. In addition, thereby, in USA being at big a problem as respectively the type 1 diabetes, and the epilepsy, that is around 3 million persons.However, it was awful for me to read the case starting on the side 124, where Jules mother, while being by a hairdresser, told that the following day, then Jules would be in the city for book signing. Then the hairdresser wanted to hear about the book, and while hearing about celiac disease her face grew more and more concerned, for finally to excuse, and telephoned to her best friend, which she had concluded as suffering from this disease.Next day the women in question, together with her father and uncle received to the book signing. It then turned out that the father’s part of the family, were suffering from bloating, diarrhea, gas, and thought that they had “bad gutsâ€. Moreover, the women told that the doctor had removed her gall bladder. And as Jules writes, it is awful to see a patient being diagnosed by a friend to friend talking through a telephone, while the doctors could not while talking with the patient.I now own 450 doctor and health books, while now during 16 years living here in Thailand, and have been through, and seen some parallel cases, showing me the doctors missing knowledge
I bought this a few weeks before my celiac test results came back positive, and I'm so glad I did.The author really breaks it down in a readable, simple way. It sounded like a heavy medical book when I initially ordered it, but it's not at all. It's extremely helpful -- although I agree with the reviewer who says you likely need to read another book as well, that focuses more on the medical side.This book was critical in giving me bite size pieces of information without overwhelming me, as I pondered the potential changes if I had to go gluten free. GF is a huge lifestyle change and can bring on depression as you think about your life changing in major ways beyond your control. But this book (and some other online research) helped me realize some clear takeaways:- You can't be a mild celiac. You have it or you don't, and everyone has different symptoms (or none at all). Regardless of symptoms, the tiniest crumbs of gluten will hurt you if you have celiac disease. You have to commit to a lifestyle change.- The lifestyle change will improve your health in ways you may not even realize were connected to your celiac/gluten sensitivity. (It's crazy to me that brain fog and anxiety are connected symptoms!)- Your friends and family are here to help you. They may need some education, but you will see many do research and go to lengths to make sure you have snacks and things to eat when you socialize with them. Take comfort in that!- You can take smart steps to help change your environment (potlucks, going out to eat) to protect your body and health. You need to learn these strategies beforehand on how to act to protect yourself. Some are as simple as knowing the right way to phrase what you need a restaurant to do.I can't recommend this book enough.
I found this book almost ten months after starting my gluten-free journey. I wish I'd found it sooner. This is written very much in plain language -- highly structured, well organized, easy to understand. It embroiders the core concepts with relevant personal stories, and when possible stories that illustrate opposing views about that particular concept. It includes SIMPLE recipes, strategies for eating out safely both in restaurants and in other people's homes. The focus is not on being comprehensive but on building a core set of skills to empower you to preserve your pre-diagnosis lifestyle as much as possible. As I've been stumbling through the process on my own, trial and error has EVENTUALLY taught me many of the lessons in this book. Oh, I really really wish I'd found it sooner!The strengths of the book are also its weaknesses. In choosing to make the book accessible, some aspects of gluten-free life may be over-simplified. For example, at one point in the book, she recommends exploring the less expensive flours at ethnic food stores which are not labelled gluten free but are made from grains which are supposed to be gluten free. More recent research suggests that contamination is a significant issue with those, so that recommendation cost me a few months more of troubleshooting, trying to figure out where the gluten was hiding in my diet. Likewise, as this is an overview book, it simply can't go into depth about many of the specific issues included in the book. The book is a bit dated now, and I am hoping there will be a second edition before much longer.The basic take-home message? This won't be the only book you should read about going gluten-free, but you should definitely read this one, and as soon as possible.
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